Monday, February 2, 2009

Brianna Cleft Repair

Hi there, how are you all doing? We are doing good. We have had a lot going on lately. We sold our house at Christmas and are getting settled at our new place. It does need some updating as the d├ęcor is not our style, but that will come with time.

The other thing I would like to update you on is Brianna’s surgery. She will undergo her cleft palate repair on Tuesday February 10th. This will be a 3-5 hour procedure and then she will be hospitalized for 1-2 days following if all goes well. Of course, we are worried about anesthesia however we have the same anesthesiologist that we have had the other 4 times she has been under. We do feel very confident in that. The real kicker of this procedure is the recovery process. Brianna will have to eat soft pureed foods for 6 weeks and can only use a traditional cup. Nothing can go past the teeth. The first 3 weeks, she will also have to wear “No-No’s” on her arms. These keep her arms straight so she does not put anything into her mouth. Please pray that we make it. She has always been a trooper and she is resilient, but we are nervous. The Dr’s. tell us to prepare for weight loss. Ryan, and I are getting ready for a smoothie diet as well. Being that Brianna is almost 2, she wants to try and eat everything we do. We are right in it with her. Bring on the yogurt, protein, frozen fruit and blender. If any of you have any good pureed food recipes, we could use them.

So please pray for the following –

  1. No sickness prior to surgery (so she can have it).
  2. Successful anesthesia and surgical procedure
  3. Smooth recovery with good adjustment to new diet
  4. Patience

Unfortunately, we also will have to endure another hip surgery in the future. We found out 2 weeks ago that when Brianna is sitting in a “frog” position, her hips are in, but when she stands or straightens her legs out, the hips pop out. One good thing is the sockets are forming nicely. It is just the ball of the hip that does not want to stay in. This means, they will cut the bone, realign the hips, and place her in the lovely spica cast for a minimum of 6 weeks. We find out in May when this procedure will take place. On a positive note, the Dr. was very pleased with how well Brianna is standing, walking, and getting around. Our visit was spent walking up and down the hallway because Brianna would not stay in the room. Brianna let her Dr. assess her and then she took her for a walk while we discussed her hips. It is great having such a flexible physician accommodate your child.

I will be sure and send an e-mail out as soon as I can following her procedure. Please keep the “Barle’s” in your thoughts and prayers. We appreciate it!! ANy advice from people that have experience is greatly appreciated!!

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